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Preparing for adulthood: Health

Preparing for adulthood: Health

We'll make sure you and your parents or carers get information, advice and support they need when moving from children's health care services to adult health care services.

You can find out more below.

When you move to adult services at the Royal Berkshire Hospital will happen at different times and in different ways depending on your needs.

It will usually happen between 16 and 19. As you move closer to becoming an adult you and your parents or carers should talk to your paediatrician.

The Ready Steady Go project

The Ready Steady Go project is an easy to understand guide to what to expect as you move to adult health services.

Visit the University Hospital Southampton website to find out more.

If you need a new wheelchair or if you need adjustments made to the wheelchair you already have, visit the Royal Berkshire NHS Foundation Trust Wheelchair Clinic web page.

The  Children's Community Learning Disability Nurse (CLDN) will make a referral  to the Adult Learning Disability Health Team if you need extra help and support. 

The Adult Learning Disability Health Team will then decide what kind of help and support you'll need.

This might mean you'll continue to get some help Children's Community Learning Disability Nurse (CLDN) to make sure your new support is working.

The Child and Adolescent Mental Health Service (CAMHS) will be invited to your Annual Reviews. They'll also help with planning as the you move towards adulthood.

Moving on from The Child and Adolescent Mental Health Service (CAMHS)

When you reach 17 and a half  The Child and Adolescent Mental Health Service (CAMHS) will look at whether you'll need mental health support after you're 18.

If you do need support they'll help decide who can help best. This could be with the Community Mental Health Team (CMHT) or the Learning Disability services.

The Child and Adolescent Mental Health Service (CAMHS) will then make a referral to whichever service will support you. 

If you're moving to Community Mental Health Team (CMHT) there'll be a care planning approach meeting to make sure your move goes smoothly. You'll be invited to the meeting along with your family, someone from CAMHS and someone from CMHT.

Medication

If you need long term medication after you're 18 but this doesn't need to be overseen by a Psychiatrist, then your GP will manage it.

The term ‘continuing care’ has different meanings in child and adult services. The young person will be helped to understand this and its effects from the start of transition planning. All related services will work together with the young person to find how they can best support them to reach their wanted outcomes.

The Clinical Commissioning Group (CCG) (responsible for health commissioning) with the Local Authority and other partners will progress and manage the transition planning process for the young person. Trained staff with knowledge of the Adult NHS continuing healthcare process will provide guidance and help answer any questions a young person may have.

  • At the age of 14 - Children’s services in the Local Authority will name those young people who may need adult NHS continuing healthcare and will inform the Wokingham Clinical Commissioning Group.
  • At the age of 16 - A formal referral for screening is made to the adult NHS continuing healthcare team.
  • At the age of 17 - eligibility for adult NHS continuing healthcare will be decided in principle by the Wokingham Clinical Commissioning Group using the decision-making processes set out in this Adult Framework.

Evidence will be considered from health plans, assessments and other plans developed from the transition process.
Packages of care will be commissioned in time for the young person’s 18th birthday (or later, if it is agreed that it is more appropriate for the care to be transferred then). Staff from adult services will be involved in both the assessment and care planning to make sure there is a smooth transition to adult services.

  • At the age of 18 - Any entitlement that is identified before a young person reaches adulthood will come into effect on their 18th birthday

The young person will be advised if they are not eligible for a package of adult NHS continuing healthcare. An independent review can be requested if a young person is not happy with the decision. There may be other health needs that are still the duty of the NHS. In these cases CCGs will still be part of the transition planning process and will ensure that appropriate arrangements are in place to meet these needs.

The care package may change if the young person’s needs or circumstances have changed. No services or funding will be withdrawn unless a full joint health and social care assessment has been carried out and alternative funding arrangements have been put in place.

Plans will set out who will take responsibility for a young person’s ongoing care. CCGs and other partners will ensure that appropriate services are put in place to meet their needs.

Emergency Department

At the Royal Berkshire Hospital (RBH) we have a separate Children's Emergency Department which is located next to the Adult Emergency Department.  Young people can be treated here up to the age of 16.

Admission to Hospital

If a young person has to be admitted to hospital, they will usually go to an adult ward if they are over the age of 16.  There are some circumstances when a young person would remain under the care of the children's doctors if they are between the ages of 16-19 but this decision would be made by the appropriate clinical staff.

Transition Policy

The Trust's transition policy and associated guidelines sets out the best practice for all healthcare professionals at the RBH, enabling the delivery of a well planned transitional process for young people with long term health needs.  This policy is still in development (July 2015) but it will be available on the Royal Berkshire Hospital website once completed.

Health guides

The Foundation for People with Learning Difficulties website has lots of easy read guides on medical conditions

The EasyHealth website also produces lots of useful easy read guides and videos on health related subjects

The  NHS South of England picture of health website has easy read guides on a variety of health topic.

Royal Berkshire Hospital guides

The Royal Berkshire NHS Foundation Trust provides a range of easy read leaflets for patients with communication difficulties. These include:


Visit the a NHS South of England picture of health website to find easy read guides on health topic.

Find local health services via NHS Choices website.

Read the NHS England Accessible Information Standard which informs organisations how they should make sure that disabled patients receive information in formats that they can understand and receive appropriate support to help them to communicate.

The council for disabled children have produced a guide to your legal rights which includes a chapter on transition to adulthood.

NHS Berkshire West have produced 2 videos about health checks. 

Watch the videos below:

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