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National organisations - useful links
The following organisations offer information, support and assistance to families nationally who have a child with additional needs:
| Organisation | Contact details |
| Advisory Centre for Education (ACE) | Tel: 0808 800 5793 |
| Action for Sick Children | Tel: 0207 843 6444 |
| Attention Deficit Disorder Information and Support Service (ADDISS) | Tel: 0208 952 2800 |
| The ADHD UK Alliance | Tel: 0808 808 3555 |
| Afasic (for speech impaired children) | Tel: 0845 355 5577 |
| ASBAH (spina bifida /hydrocephalus) | Tel: 0845 450 7755 |
| British Epilepsy Association | Tel: 0808 8005050 |
| British Institute for Brain Injured Children | Tel: 01278 684 060 |
| BDF Newlife (for children with inborn conditions) | Tel: 08700 707020 |
| Brittle Bone Society | Tel: 01382 204 446 |
| CarersUK | Tel: 0808 808 7777 |
| Cerebra (for brain injured children) | Tel: 0800 328 1159 |
| Changing Faces | Tel: 0845 4500 275 |
| Children's Legal Centre (advice for children, parents and carers) | Tel: 0845 345 4345 |
| Contact a Family | Tel: 0808 808 3555 |
| Cystic Fibrosis Trust | Tel: 0845 859 1000 |
| Diabetes UK | Tel: 0845 120 2960 |
| Disability Equality in Education (DEE) | Tel: 0207 359 2855 |
| Down Syndrome Association | Tel: 0845 230 0372 |
| Dyslexia Association | Tel: 0118 966 8271 |
| Encephalitis Information Resource | Tel: 01635 699 599 |
| Epilepsy Action | Tel: 0808 800 5050 |
| EOFHR European Organisation of Family Health Research | Tel: 41 1 638 1113 |
| Face2Face (parents supporting parents of disabled children) | Tel: 0844 800 9181 |
| Fibromyalgia Association | Tel: 0870 220 1232 |
| Headway (brain injury) | Tel: 0800 800 2244 |
| I CAN (speech and language difficulties) | Tel: 0845 225 4071 |
| Learning Disabilities Helpline | Tel: 0808 808 1111 Minicom: 0808 808 8181 |
LOOK (National Federation of Families with Visually Impaired Children) | Tel: 0121 428 5038 |
| National Autistic Society | Tel: 0845 070 4004 |
| National Blind Children’s Society | Tel: 01278 764 764 |
| National Deaf Children’s Society | Tel: 0808 800 8880 |
| National Eczema Society | Tel: 0207 281 3553 |
| National Meningitis Trust | Tel: 0808 800 3344 |
| National Society for Epilepsy | Tel: 01494 601 400 |
| OAASIS (Office for Advice, Assistance, Support and Information for Special Needs) | Tel: 01590 622 880 |
| Royal National Institute for the Blind | Tel: 0845 766 9999 |
| Royal National Institute for the Deaf | Tel: 0808 808 0123 |
| SCOPE (Cerebral Palsy) | Tel: 0808 800 3333 |
| SENSE (sensory impairment) | Tel: 0207 561 3384 |
| Spinal Injuries Association | Tel: 0800 980 0501 |
| Syndromes without a Name (SWAN) | Tel: 01922 701 234 |
| Talking Point (speech and language difficulties) | Tel: 0207 674 2799 |
| Unique (rare chromosome support group) | |
| Well-Child (for children with disabilities and chronic illness) | Tel: 0808 801 0330 |
| Working Families (for working parents with disabled children) | Tel: 0207 253 7243 |
This list is not exhaustive, so contact the Family Information Service if the organisation that you require is not listed.
